Throughout the years, there has been a growing interest for an Inuit Circumpolar Cohort and follow-up among academia, policy-makers and communities. In June 2012 (11-13th) in Kuujjuaq, Nunavik, a workshop entitled Inuit Health in Transition Study gathered stakeholders, collaborators and principal investigators of three health surveys carried out in Nunavik, Nunasiavut, Nunavut, Inuvialuit Settlement Region and Greenland (the surveys are (1) the 2004 Nunavik Cohort Study; (2) the International Polar Year (IPY) Adult Inuit Health Survey 2007 – 2008; and (3) the Inuit Health in Transition Greenland 2005-2010).
[frame src=”http://circhnet.org/wp-content/uploads/2013/01/figure1.jpg” width=”257″ height=”180″ lightbox=”on” title=”Figure 1″ align=”right”]During this workshop it was decided the creation, development and maintenance of the Inuit Circumpolar Cohort through a platform that will gather data from the three health surveys concerned. The main goal of this data platform is to facilitate cross-disciplinary data inventory in long-term and to ensure accessibility and sharing of data. The structure and mechanisms, the application and exports, as well as the different actors involved in this data platform are illustrated in Figure 1. The all-encompassing nature of the different components of the data platform reveals the integrative approach of the Inuit Circumpolar Cohort. A the very early stage of the operationalization this platform, challenges that touch all ethical and functional aspects of data management are faced; including security, storage, comparability level, access and responsibility, as well as how to respond to the ethical review and research requirements in each jurisdiction (such as licensing and approvals procedures). This platform can be seen as an iterative process of learning and adaptation with the involvement of new data and partners.
Internet links of the health surveys and associated main investigators:
- The Nunavik Inuit Health Survey 2004 (Eric Dewailly)
- The International Polar Year (IPY) Adult Inuit Health Survey 2007 – 2008 (Kue Young, Grace Egleland and Laurie Chan)
- Inuit Health in Transition – Greenland survey 2005-2010 (Peter Bjerregaard)
– Aline Philibert